Mytubefeeding is an online resource for caregivers, parents and individuals who are new to tube feeding and the options available to them.
Making Tube Feeding a Pleasant Experience
The transition to home tube feeding requires some adjustments and there are ways to make these adjustments easier. If you experience any worry as a patient or a caregiver, rest assured there are many things to help you feel better and more at ease. For example, talking to friends and family about your loved one’s tube feeding may make you more comfortable with the transition. Or, consider scheduling their feedings during family meal time. If you choose to administer feedings at other times, be sure to continue to engage in family and other social activities. The adjustment may require time and patience, but soon it will become a routine.
Tube Feeding Community & Resources
Oley Foundation
The Oley Foundation is a national, independent, non-profit 501(c)(3) organization that provides information and psycho-social support to parents and caretakers of children with enteral nutrition needs.
www.oley.orgCaring Bridge
CaringBridge provides free websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier.
www.CaringBridge.orgMIC-KEY Tube
Feeding tubes designed to help you share and learn best use and care practices. We also provide online tools and resources to gain knowledge and tips from both medical professionals as well as real-life experiences.
www.mic-key.comA.S.P.E.N.
The American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.) is dedicated to improving patient care by advancing the science and practice of nutrition support therapy.
www.NutritionCare.orgEnteraLite® Infinity® Feeding Pump
A resource center for EnteraLite® Infinity® Feeding Pump. Here you can take a virtual guided tour of the pump, hear real stories of everyday triumph using EnteraLite® Infinity® Feeding Pump and watch training videos and read FAQs.
www.Infinityfeedingpump.comThe Feeding Tube Awareness Foundation
The Feeding Tube Awareness Foundation is a 501(c)(3) charitable organization dedicated to pediatric enteral feeding, with the mission to provide parents with the practical knowledge and support they need while educating the general public by raising positive awareness of tube feeding.
www.feedingtubeawareness.orgNASPGHAN
NASPGHAN (North American Society for Pediatric Gastroenterology, Hepatology and Nutrition) strives to improve the care of infants, children and adolescents with digestive disorders by promoting advances in clinical care, research and education.
www.naspghan.orgFeeding Matters
Feeding Matters is a nonprofit organization committed to improving the lives of infants and children with pediatric feeding disorders. Our education, advocacy, research, and treatment initiatives are providing families and healthcare professionals with the resources and support they need when caring for a child who struggles to eat.
www.feedingmatters.org