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Support for Caregivers

Making Tube Feeding a Pleasant Experience
Tube Feeding Community & Resources

Making Tube Feeding a Pleasant Experience

WHAT TO EXPECT
The transition to home tube feeding requires some adjustments and there are ways to make these adjustments easier. If you experience any worry as a patient or a caregiver, rest assured there are many things to help you feel better and more at ease. For example, talking to friends and family about your loved one’s tube feeding may make you more comfortable with the transition. Or, consider scheduling their feedings during family meal time. If you choose to administer feedings at other times, be sure to continue to engage in family and other social activities. The adjustment may require time and patience, but soon it will become a routine.


Tube Feeding Community & Resources

Oley Foundation
The Oley Foundation is a national, independent, non-profit 501(c)(3) organization that provides information and psycho-social support to parents and caretakers of children with enteral nutrition needs.
www.oley.org


Caring Bridge
CaringBridge provides free websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier.
www.CaringBridge.org


MIC-KEY Tube
Feeding tubes designed to help you share and learn best use and care practices. We also provide online tools and resources to gain knowledge and tips from both medical professionals as well as real-life experiences.
www.mic-key.com


A.S.P.E.N.
The American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.) is dedicated to improving patient care by advancing the science and practice of nutrition support therapy.
www.NutritionCare.org


EnteraLite® Infinity® Feeding Pump
A resource center for EnteraLite® Infinity® Feeding Pump. Here you can take a virtual guided tour of the pump, hear real stories of everyday triumph using EnteraLite® Infinity® Feeding Pump and watch training videos and read FAQs.br> www.Infinityfeedingpump.com


The Feeding Tube Awareness Foundation
The Feeding Tube Awareness Foundation is a 501(c)(3) charitable organization dedicated to pediatric enteral feeding, with the mission to provide parents with the practical knowledge and support they need while educating the general public by raising positive awareness of tube feeding.
www.feedingtubeawareness.org


NASPGHAN
NASPGHAN (North American Society for Pediatric Gastroenterology, Hepatology and Nutrition) strives to improve the care of infants, children and adolescents with digestive disorders by promoting advances in clinical care, research and education.
www.naspghan.org


Feeding Matters
Feeding Matters is a nonprofit organization committed to improving the lives of infants and children with pediatric feeding disorders. Our education, advocacy, research, and treatment initiatives are providing families and healthcare professionals with the resources and support they need when caring for a child who struggles to eat.
www.feedingmatters.org


OWN YOUR FEEDING TUBE: Learn how to use and live with your feeding tube in this five-part video series with Gunnar Esiason.

1. The First Day Home with Your Feeding Tube.
In this "How-To" video, you wil see how you can use your feeding tube in different... MORE>
2. What Can I Expect from My Feeding Tube?
The video will show you a few lifestyle changes you may experience after you have had... MORE>
3. Normalcy with the Feeding Tube.
In this video, you will see how those who require a feeding tube are still able to maintain a... MORE>
The content on this website is for educational purposes only and should not be considered to be medical advice.
It is not intended to replace the advice of your healthcare team.
Please consult your healthcare team with any questions about your home tube-feeding plan.