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PKU-Product

PKU-Product

Programs for Continuing Professional Education (CPE)

The video resources below are provided by Vitaflo USA and intended for health care professionals only.

*Video resources are intended for health care professionals only.

Management of Adult Patients with PKU: A Clinic’s Perspective

Speaker(s): Bridget Tomic, RD and Elizabeth Toolan, MS, RD

This program was recorded on November 8th, 2018.

Learning Objectives:

  • Gain insight into the adult PKU phenotype and barriers to adherence
  • Understand one approach to monitoring and follow up of adult PKU patients in one clinic
  • Explore future developments and new technologies for improving dietary treatment and patient communication

RDs and DTRs practicing in the US may log CPE activities under Activity Type 175 for up to three years from the original presentation date. This program is eligible for 1 CPEU. The activity number for viewing the recording through November 8th, 2021 is 145116 (levels 1,2,3).

To learn more about submitting this activity type visit CDR

Maternal Phenylketonuria Treatment Using Sapropterin and Glycomacropeptide Formula

Speaker(s): Heather Bausell, RD

This program was recorded on November 8th, 2018.

Learning Objectives:

  • Understand the use of sapropterin therapy for the treatment of MPKU patients
  • Understand the use of GMP based formulas for the management of MPKU patients 
  • Identify Sapropterin and GMP formulas as a safe treatment for MPKU

RDs and DTRs practicing in the US may log CPE activities under Activity Type 175 for up to three years from the original presentation date. This program is eligible for 1 CPEU. The activity number for viewing the recording through November 8th, 2021 is 145117 (levels 1,2,3).

To learn more about submitting this activity type visit CDR.

Understanding and Supporting the Use of Breastmilk in Inborn Errors of Metabolism

Speaker(s): Katherine Arduini, RD

This program was recorded on November 8th, 2018.

Learning Objectives:

  • Review the feasibility and benefits of providing breastmilk to infants with inborn errors of metabolism (IEM)
  • Illustrate the mother’s experience in the provision of breastmilk 
  • Recognize the role the dietitian can play in supporting and promoting the use of breastmilk in the IEM population

RDs and DTRs practicing in the US may log CPE activities under Activity Type 175 for up to three years from the original presentation date. This program is eligible for 1 CPEU. The activity number for viewing the recording through November 8th, 2021 is 145115 (levels 1,2,3).

To learn more about submitting this activity type visit CDR.

 

Advances in the Nutritional Management of PKU: The Story Unfolds

Recorded live Symposium at GMDI on April 27th, 2018.

Presenters: Prof. Anita MacDonald. PhD, BSc, OBE, Anne Daly, BSc Hons, MMed Sci, RD, Dr. Sandy Van Calcar PhD RD LD, and Dr. Joyanna Hansen, PhD, RD, LD

Emerging evidence of the use of glycomacropeptide (GMP) based products in the dietary management of PKU has generated interest in its potential benefits. Long-term efficacy studies and use in individuals under the age of 11 are lacking for the use of GMP. This presentation outlines the most recent data from an ongoing long-term clinical trial in the UK, involving children with PKU from the age of 5 years, taking a GMP based medical food as part of their dietary management. Additionally, the processes and challenges of initiating a US based GMP clinical trial, with ongoing recruitment, are discussed.

Learning Objectives: 

  1. Understand how an ongoing clinical research trial has shaped the nutritional formulation of a GMP based medical food 
  2. Describe factors related to long-term growth, nutritional status and metabolic control of children taking a GMP based medical food compared to an amino acid based medical food 
  3. Review the process for initiating a clinical trial using medical foods in a U.S. metabolic center
  4. Identify research resources that may be helpful for dietitians seeking to initiate a clinical trial of medical foods

This program is eligible for 1 CPEU for registered dietitians/nutritionists through the Commission on Dietetic Registration through April 27th, 2021.

Advances in the Nutritional Management of PKU: The Story Unfolds from Vitaflo USA on Vimeo.

GMP in PKU - The Latest Research

Recorded live webinar on December 12, 2017. 

Emerging evidence of the use of glycomacropeptide (GMP) based products in the dietary management of PKU has generated interest in its potential benefits. Long-term efficacy studies and use in individuals under the age of 11 are lacking. The speakers will present the latest research from an ongoing, long term study being conducted in the UK. This is the first long term clinical trial including children from the age of 5 – 16 years with PKU, comparing a group using a GMP based medical food as part of dietary management with a group taking an amino acid based medical food. Data presented will include, impact on metabolic control, growth and nutritional status.

Speakers: Elissaveta Johnson, Professor Anita MacDonald, PhD, BSc, OBE, Anne Daly, MS, BSc, RD, and Rachel Coode. 

GMP in PKU - The Latest Research from Vitaflo USA on Vimeo.

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PAH Deficiency Treatment Protocols: An overview and real life successes and challenges implementing in clinic

We invite you to join our presenter Lauren Dwyer, MBA, MPH, RD, LDN, Metabolic Dietitian University of Illinois at Chicago for an overview of the PAH Deficiency Treatment Protocols and a presentation of two case studies.

 

Participants of this presentation will be able to:

  • Describe the treatment protocol of PAH deficiency
  • Formulate implications for clinical practice
  • Utilize case studies as a reference for managing patient care

Duration – 33 min


Feeding young children with PKU: dietary treatment vs. developmental needs

We invite you to join our speakers Dr. Anita MacDonald, Consultant Dietitian in Inherited Metabolic Dietetics, Honorary Professor in Dietetics, Birmingham Children’s Hospital and Kathryn Moseley, MS, RD, Metabolic Dietitian and Assistant Professor of Pediatrics, University of Southern California/Keck School of Medicine. Dr. Macdonald provides an overview of weaning and feeding challenges for the young child with PKU. She presents a novel approach to medical food administration used in the UK, the introduction of a concentrated semi-solid medical food around 6 months of age designed to meet both the nutritional and developmental needs of the child. Kathryn Moseley provides practical guidance and strategies on the introduction of solid foods, and presents a case study illustrating establishing a child on a concentrated second stage medical food – PKU Gel.


By viewing this presentation, participants will be able to:

  • Identify factors influencing the weaning process and feeding behavior
  • Identify readiness for introducing solid foods
  • Describe the rationale behind the introduction of a second stage concentrated medical food
  • Understand the systematic approach of introducing a second stage concentrated medical food



Duration – 57 min


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