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Resources for Glycogen Storage Disease (GSD)

In this section, you will find key support materials for the use of our products within the dietary management of inborn errors of metabolism (IEM) which includes, product guidelines and videos. These materials have been developed in conjunction with Key Opinion Leaders (KOLs) and healthcare professionals, to enhance your learning and knowledge.

Videos
The video resources below are provided by Vitaflo USA and intended for health care professionals only. 
 
Video resources are intended for health care professionals only.

Nutritional management of Glycogen Storage Disease

Join our speaker Dr. Laurie Tsilianidis, M.D. of Cleveland Clinic for a presentation on the Nutritional management of Glycogen Storage disease.


By viewing this presentation, participants will be able to:

  • Explain the dietary guidelines and sugar restrictions of hepatic GSD
  • Discuss the physiological basis for nutrition management of each type of GSD discussed
  • Apply the provided information to prevent long-term metabolic derangements and complications while optimizing nutritional status in their GSD patients.



Duration – 55 min


Case study: GSD Type 1b Infant / Glycogen Storage Disease Type 0 Case Study

Case study: GSD Type 1b Infant (segment 1)

Join Joyanna Hansen, PhD, RD, LD, assistant professor of the department of Molecular and Medical Genetics and Metabolic Dietitian from the Oregon Health & Science University as she presents a case study on an infant with GSD Type 1b and the use of continuous glucose monitoring.


By viewing this presentation, participants will be able to:

  • Describe medical nutrition therapy guidelines for GSD infants
  • Formulate implications in managing a GSD type 1b infant
  • Identify potential applications for use of continuous glucose monitoring in GSD patients

This presentation is preapproved for 1 CEU


Duration – 0-27 min


Glycogen Storage Disease Type 0 Case Study (segment 2)

We invite you to join Dr. Laurie Tsilianidis, M.D. of Cleveland Clinic as she presents a case study describing a Glycogen Storage Disease Type 0 diagnosis.


By viewing this presentation, participants will be able to:

  • Recognize symptoms of a possible GSD Type 0 diagnosis
  • Describe initial follow up therapy for GSD type 0
  • Identify the differences between a type 1 diabetes diagnosis and a GSD type 0


Duration – 27-50 min


Nutritional Management of GSD Type I / Nutritional Management of GSD Type III

Nutritional Management of GSD Type I (segment 1)

Please join our speaker Kaitalin Ross, RD, LD/N of The University of Florida Glycogen Storage Disease Program as she explains the Nutritional Management of GSD Type I at University of Florida.


By viewing this presentation, participants will be able to:

  • Identify the different dietary guidelines and /or sugar restrictions associated with Type 1 of GSD discussed
  • Explain the rationale of the current nutritional managements associated with Type 1 of GSD discussed
  • Apply knowledge of nutritional deficiencies to promote appropriate weight gain/growth and optimize the patient’s nutritional status



Duration – 0-27 min


Nutritional Management of GSD Type III (segment 2)

Please join Anne Boney, Med, RD, LD, Pediatric metabolic dietitian as she describes evidence behind the Nutritional Management of GSD Type III


Participants of this presentation will be able to:

  • Identify the differences between GSD Type III a and Type III b
  • Explain the evidence to support nutritional management of GSD type III
  • Apply implications from case examples of nutritional management in practical situations



Duration – 27-58 min


Evidence and Practices in the Use of Uncooked Cornstarch and Glycosade in GSD / Creating a Glycogen Storage Disease Program

Evidence and Practices in the Use of Uncooked Cornstarch and Glycosade in GSD (segment 1)

We invite you to join our speaker Dr. David Weinstein of the University of Florida Glycogen Storage Disease Program, as he describes the use of uncooked cornstarch and Glycosade in treating GSD patients.


By participating in this presentation, participants will be able to:

  • Explain the history of cornstartch use and compare with continuous glucose therapy
  • Describe The University of Florida’s approach to dosing cornstarch
  • Describe new data on the long term outcome in people treated with cornstarch
  • Discuss advances in the cornstarch field (Glycosade)



Duration – 0-38 min


Creating a Glycogen Storage Disease Program (segment 2)

Join our speaker Dr. Laurie Tsilianidis, M.D. as she explains the process of setting up a Glycogen Storage Disease Program at the Cleveland Clinic


Participants of this presentation will:

  • Gain an understanding of how to develop an inpatient protocol for the initiation of Glycosade
  • Develop Practical strategies for patient selection, dosing, monitoring and follow up



Duration – 38-55 min


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